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 An Introduction to my daughter

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Sessy
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Gender : Male Posts : 74
Points : 195
Popularity : 11
Join date : 2018-09-24
Age : 41
Location : Ohio

20180928
PostAn Introduction to my daughter

My name is Sessy and many of you on here know of my daughter Autumn. She is twelve years old, thirteen in February, and she has Autism. Autism is, a mental condition, present from early childhood, characterized by difficulty in communicating and forming relationships with other people and in using language and abstract concepts. A serious developmental disorder that impairs the ability to communicate and interact.

More than 200,000 cases are reported annually in the US. According to Web MD, Autism is a complex neurobehavioral condition that includes impairments in social interaction and developmental language and communication skills combined with rigid, repetitive behaviors. Because of the range of symptoms, this condition is now called autism spectrum disorder (ASD). It covers a large spectrum of symptoms, skills, and levels of impairment. ASD ranges in severity from a handicap that somewhat limits an otherwise normal life to a devastating disability that may require institutional care.

I could go on quoting statistics and facts about it but when it really comes down to it, the best way to learn about what autism really is is to be around someone who has it.

Autumn was diagnosed with Autism when she was three years old. Prior to this I had taken her to many different doctors, specialists, and therapists. At one point I was told that she had cerebral Paulsey. She would never walk, or speak. Would never dress or feed herself, and would basically be a burden to me my entire life. Personally I didn't agree with this diagnosis and so I kept looking, taking her different places, putting her through all kinds of tests that were terrifying for a child and heart wrenching for me to watch her go through it all.

I had asked if it was possible that she had autism. There were factors surrounding her birth that made me wonder if there had been neurological damage. She was born with a large hemotoma on the back of her head that was fluid filled and pressing on her brain stem. At the age of 9 months the hematoma had to be drained because it was growing too large and we were all concerned about possible brain damage. It was never confirmed but I strongly believe that the cause of the trauma was from having had vacuum extraction used on her during delivery in which a small plunger type device was put against her head and then used to suction her out.

After birth she was immediately rushed out of the room and examined. The suction had jerked her head so far to the side that at first the medical staff thought that her neck was broken. It was determined that she had suffered torticollis. ( Wry neck, or torticollis, is a painfully twisted and tilted neck. The top of the head generally tilts to one side while the chin tilts to the other side. This condition can be congenital (present at birth) or acquired. It can also be the result of damage to the neck muscles or blood supply during delivery). Within 2 weeks of her life she was already in therapy to correct this issue and that was when her long journey of hospitals, doctors, and therapists began. My own medical training told me right off that something was not right but every time I mentioned Autism I was quickly told no and then sent off to another specialist. It wasn't until her Physical therapist back in 2009 finally said that she felt Autumn had Autism that her doctor finally listened and sent me to an autism center to have her assessed.

So, we had the diagnosis finally. But what to do with it? My main concern at this point was would she walk? Would she talk? What limitations would she have? At that time I had no idea of the behaviors that would eventually follow as she grew older, or the obstacles we would face as a family with each passing year. She is twelve years old now, nearly an adult, and yet she has the mind of a child. Mentally she is closer to a five year old child, and while her mental age does progress with age, she will always be severely behind her actual age group. She wears pull ups, has tantrums, some of the most horrible tantrums I have ever seen, and she is prone to destructive and violent outbursts. But, that is just one side of her. She is also a very sweet, loving, and good hearted child that wants nothing more than to please those around her. She may not be able to express herself easily and her emotional stability is lacking, but she is capable of showing love, joy, sorrow and all other emotions that we have. It is with love, tolerance, and understanding, that we live each day and continue on this ever changing journey of wonder and sometimes heartache. Children are a gift, no matter their limitations, we should feel so lucky to have been trusted with something so very precious.


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An Introduction to my daughter :: Comments

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Re: An Introduction to my daughter
Post on Fri Sep 28, 2018 6:05 pm by Lily Thunder
In my personal experience with individuals with Autism, although they have a difficult time communicating, once i get to know them and find out their interest, i learn they are highly intelligent and can show compassion to those to get to knew them....i admire those who care and love such beautiful people.......
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Re: An Introduction to my daughter
Post on Sat Sep 29, 2018 9:58 am by SweetEva
very well written Sessy and nicely said. Personally having met Autumn, I can say that she is a wonderful girl with a huge heart and we are all very proud of her and you.
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